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SPS Stiff Person Syndrome( need info)

Discussion in 'Off Topic Threads' started by cubancigar2000, Dec 9, 2011.

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  1. cubancigar2000

    cubancigar2000 Well-Known Member

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    Back in 1994 I was moved ( one of many) by the company to South Dakota. I only lived there 3 years but on the very first day I met a guy who became my best friend & still is. He has been going through some medical problems recently and after a week in the hospital has learned that (they think, not sure yet) that he has SPS commonly called Stiff Person Syndrome. I have been reading everything I can find on the internet but it is extremely rare. Just wondering if anybody on here knows a person with this rare disease or can share any info.
     
  2. timb99

    timb99 Well-Known Member

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    My cousin's husband has this.

    Sorry, but I really don't know that much about it, other than it is real, very rare, and can be extremely debilitating.
     
  3. stokinpls

    stokinpls Well-Known Member

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    Boy, that sounds awful. They have my prayers.
     
  4. cubancigar2000

    cubancigar2000 Well-Known Member

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    Location:
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    Thx TimB99. Yes it so far has been a very horrible experience for my friend. I am very worried about him. A better person I have never met
     
  5. timb99

    timb99 Well-Known Member

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    cc200,

    Just google <i>stiff person syndrome may clinic</i> and you'll get several good places for info.

    It was discovered in the 50's at Mayo. That's where my cousin's husband is being treated.
     
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