1. Attention: We have put together a thread with tips and a tutorial video to help with using the new software. Please take a moment to check out the thread here: Trapshooters.com Tutorial & Help Video.
    Dismiss Notice

Parkinsons Disease, info needed

Discussion in 'Off Topic Threads' started by cubancigar2000, May 1, 2012.

Thread Status:
Not open for further replies.
  1. cubancigar2000

    cubancigar2000 Well-Known Member

    Joined:
    Jan 29, 1998
    Messages:
    10,521
    Location:
    Idaho
    My youger brother age 68 just learned he has early stages Parkinsons. He has experienced symptons for the last two years but the doctors thought he had a mild stroke ( a mis diagnosis) so the parkinsons is described as early stage but well into the second year. My question is are there any of you that have it or know a family member with it. I want to know more than I can read on the net about what he should do and what to expect. Some real life experiences are sometimes the best info
     
  2. DBSkeet

    DBSkeet Member

    Joined:
    Feb 10, 2010
    Messages:
    52
    Make sure he sees a GOOD neurologist. We thought my father had Parkinsons for 4 or 5 years. He tried all kinds of meds and nothing worked for him so we took him to a specialist in Buffalo and found out he didnt have Parkinsons. He has a thing called Lewy Body Disease which looks similar to Parkinsons. The local neurologist and primary care doc never picked up on it. If your brother hasnt done so yet he should see a specialist and rule out Lewy Body Disease. My father spent years taking Parkinsons medications that only made his symptoms worse.

    Dan
     
  3. cubancigar2000

    cubancigar2000 Well-Known Member

    Joined:
    Jan 29, 1998
    Messages:
    10,521
    Location:
    Idaho
    Thanks Dan, that is the kinds of info I want. In this case a neuologist did the diagnosis however.
     
  4. Straight99

    Straight99 Member

    Joined:
    Apr 23, 2007
    Messages:
    336
    My dad was also diagnosed with Parkinsons and nothing helped. About 4 years later he was diagnosed with Essential Tremor, which is what it really was. The treatments for that worked much better. I wish we could have found out years earler. He went to Mayo.
     
  5. Montanaken

    Montanaken Member

    Joined:
    May 9, 2011
    Messages:
    69
    My mother was diagnosed with Parkinson's Disease 11 years ago. Meds have been adjusted many times throughout those 11 years, and mom is still doing pretty well. We don't let her drive anymore but she tells us she could if she had to. My dad still takes her to trapshoots where she has always enjoyed vistiting with the other women. She was a very avid golfer for many years, however she can't hit the ball very far any more and plays out after 3 or 4 holes. Her quality of life has been pretty decent for the past 11 years and we look to forward to many more years of her being at home with dad. Presently our biggest fear for her is falling - as her balance and strength are certainly compromised. She is 69. Ken Nelson
     
  6. maka

    maka Member

    Joined:
    Nov 23, 2009
    Messages:
    379
    There is a paper back book titled "100 questions and answers about parkinson" . Put out by National Parkinson Foundation. Written by Abraham Liebermann, MD with Marcia McCall. ISBN 0-7637-4140-X Hope this helps and good luck.
     
  7. tom berry

    tom berry Active Member

    Joined:
    Jan 29, 1998
    Messages:
    760
    Location:
    Winterset, IA
    My father in law had Parkinsons for several year. He finally passed around Thanksgiving 2011. I think he was 80.

    I imagine that every case is different, but we watched him progressively deteriorate over the past 15 years. In the last few years he couldn't communicate or feed himself. It was just awful to watch the progess and extremely hard on our family.

    I pray that is the worst case scenario and that your brother has a much different experience.
     
  8. kiv-c

    kiv-c Member

    Joined:
    Nov 30, 2009
    Messages:
    852
    Is your brother a Vietnam vet? Parkinson's has now been recognized as resulting from Agent Orange exposure during the 1969-75 time frame. He should visit with the local Veterans Service Officer for more info and to possibly file a claim.

    I was diagnosed at the Mayo Clinic about 2 years ago after I started to exhibit many of the the classic signs of Parkinson's. My first indication was a resting tremor in my right hand, as well as a slight limp on the right side. Loss of sense of smell, balance issues, constipation and fatigue soon followed. A visit to the VA neurology department confirmed the diagnosis, too. I was given a disability rating of 40%, so apparently they are quite sure about the connecion between AO exposure and Parkinson's.

    the "cardinal" symptoms of PD, are resting tremor, slowness of movement (bradykinesia), postural instability (balance problems) and rigidity. Some other physical symptoms such as gait problems and reduced facial expression are also of note. Typically, symptoms begin on one side of the body and migrate over time to the other side. Also common are sleep difficulties, loss of sense of smell, constipation, speech and swallowing problems, "frozen" shoulder, drooling, and low blood pressure when standing.

    The most often prescribed medication for Parkinson's is Sinemet, a levodopa/carbidopa compound that supplies the necessary dopamine to the part of the brain responsible for motor control.

    Essential tremor is usually quite different from PD. Essential tremor of the hands typically occurs when you use your hands. Tremors from Parkinson's are most prominent when your hands are at your sides or resting in your lap.

    Kiv
     
  9. cubancigar2000

    cubancigar2000 Well-Known Member

    Joined:
    Jan 29, 1998
    Messages:
    10,521
    Location:
    Idaho
    Thx a lot KIV. Unfortunaltely he never was in the service. He was told the Sinemet would cost $450 a month and his insurance ( Medicare) wont pay & he could afford it but it would drain his retirement money and he does not want to leave his wife as a broke widow. Old age sucks for him at least.
     
  10. Don S

    Don S Member

    Joined:
    Jan 29, 1998
    Messages:
    287
    Sinemet has a generic (Carbidopa/Levodopa 25MG - 100MG) that is a lot cheaper. Check with his PDP plan. If his plan doesn't work for him, switch next year. We have found that the generic version is as effective as Sinemet. Many other Parkinsons medications (Mirapex & Amantadine) are also available in generic.
     
  11. dhip

    dhip Active Member

    Joined:
    Nov 14, 2009
    Messages:
    1,473
    Location:
    westgrove,Pa.
    A friend has Parkinsons,One thing to help at night,and he is a religious man so it was hard for him to follow the dr.s orders.He's supposed to drink one shot of Whiskey,Bourbon,or Scotch 1hr. before he goes to bed.He did as the dr. ordered and said it was the best and most relaxed sleeps he had had for a long time.Haven't seen him for a while,he moved to Mt. City Tenn., a while back.But,I hear he's doing fine.

    Doug H.
     
  12. cubancigar2000

    cubancigar2000 Well-Known Member

    Joined:
    Jan 29, 1998
    Messages:
    10,521
    Location:
    Idaho
    Thanks for all the info, really good stuff & much appreciated.
     
  13. stokinpls

    stokinpls Well-Known Member

    Joined:
    Jan 29, 1998
    Messages:
    6,481
    My best friend's wife was diagnosed with it just last Friday. She's in her early 60's. He's about my age and been battling cancer for a couple years. They just can't get a break. May God provide you all with strength and comfort.
     
Thread Status:
Not open for further replies.